As a transplant surgeon and an advocate for pediatric healthcare education, I’m thrilled to share my latest five-part series of books designed to guide children and their families through the liver transplant journey. Each book in the series breaks down complex medical concepts into relatable, engaging stories and visuals, providing much-needed clarity and comfort during what can be a challenging time.
Part One: The Basics The journey begins with Liver Transplantation: The Basics, where readers meet a relatable guide who explains the liver’s vital role in the body. Through playful analogies—like comparing a liver to a hardworking factory—the book introduces young readers to terms like “cirrhosis” and “bile.” Using colorful illustrations and a warm tone, it explains why some children need a liver transplant and introduces the two types of donors: deceased donors (“green trucks”) and living donors (“yellow beetle cars”). This foundational book sets the stage for understanding the importance of liver health and the transplant process.
Part Two: Getting Ready for Your New Liver In the second book, Getting Ready for Your New Liver, the focus shifts to preparation for transplant. Readers learn about the medical team that will support them—from hepatologists to transplant coordinators—and what to expect during pre-transplant evaluations, such as blood tests, imaging, and the all-important waitlist. By comparing the waitlist to a rollercoaster line and introducing concepts like PELD and MELD scores through the metaphor of baking a cake, the book makes medical rankings approachable and less intimidating. It also emphasizes the importance of staying healthy while waiting for a match.
Part Three: Time for Surgery The third book, Time for Surgery, dives into the day of the transplant. From receiving the life-changing phone call to the steps of the surgery itself, children and families are guided through every moment. This book introduces the concept of the “donor hepatectomy” and “recipient hepatectomy” with clear, age-appropriate explanations. It even discusses the different ways surgeons connect the new liver to the body—like sewing pipes together—to help children visualize what’s happening inside them. Post-surgery recovery, including the time spent in the PICU and the importance of follow-up care, is covered in a reassuring manner.
Part Four: Taking Care of Your New Liver Post-transplant life is the focus of Taking Care of Your New Liver. The book emphasizes the importance of the immune system – described as a castle being protected by “knights” – and immunosuppression medicines to protect the liver from rejection. It also educates readers about signs of infection, how to manage their health, and the critical role of regular clinic visits. By empowering children to understand their medicines and routines, the book fosters independence and confidence in managing their health.
Part Five: Your Transition to Care The final book, Your Transition to Care, is tailored for older children and teenagers. It encourages readers to take an active role in their healthcare as they approach adulthood. The book introduces goal-setting, explains the importance of staying on top of medications and doctor visits, and warns against risky behaviors like skipping medicine or consuming alcohol. With interactive elements, like spaces to record transplant details and personal goals, this book equips readers with tools to manage their health and achieve their dreams.
Why These Books Matter The liver transplant journey can be overwhelming, especially for young patients and their families. This series simplifies complex medical processes, demystifies surgery, and empowers children with knowledge. By fostering understanding, the books aim to reduce anxiety, improve communication with medical teams, and promote better health outcomes.
A Team Effort These books were made possible thanks to the collaboration of medical experts, transplant teams, and patient families. Their insights and experiences ensured the content is both accurate and relatable. As with my previous works, these books reflect a deep commitment to patient education and advocacy.
Looking Ahead I hope this series finds its way into the hands of every child and family navigating a liver transplant. Whether you’re a parent, a healthcare provider, or a patient, these books are here to support you every step of the way.
To learn more about this series and bring these resources to your patients, visit Strength of My Scars. Together, we can transform the way we educate and empower young patients.
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